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Confidentiality, consent and medical ethics news

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LGBT+ people in Singapore 'more fearful' after HIV data leak

A major leak of the confidential data of 14,200 people with HIV in Singapore could hamper a fight against new infections among LGBT+ people in the city-state, campaigners said on Tuesday.

Published
29 January 2019
From
Thomson Reuters Foundation
Singapore HIV registry data leaked online in health breach

Confidential data about more than 14,000 people diagnosed with HIV, including foreign visitors, has been stolen in Singapore and leaked online.

Published
29 January 2019
From
BBC News
Jamaica: Don’t Coerce Women Living With HIV To Tie Off

Patrice (not her real name) is a woman living with HIV. In a consultation with her doctor, she explained that she and her partner were planning to have a child. The doctor is said to have told her that she was wicked to want to get pregnant and pass the virus on to her child.

Published
23 January 2019
From
The Gleaner
No HIV test, no marriage license, Jakarta tells couples

No HIV test, no marriage license, Jakarta tells couples - ucanews.com  UCA NewsAuthorities in the Indonesian capital Jakarta have introduced a regulation requiring couples to take an HIV test in order to obtain a marriage license.

Published
18 January 2019
From
UCA News
Family duty is a powerful force in China. Is that why so many couples signed up for the ‘CRISPR babies’ experiment?

Young adults in China feel a powerful cultural obligation to marry and have kids, but that life plan suddenly looks unattainable to people told they’re infected with HIV, particularly for the many who can’t afford or are unaware of treatments that would allow them to have uninfected children. So when an ambitious scientist offered HIV-positive men and their spouses what seemed to be a way out of this despair, several hundred couples in China jumped at the chance, expressing interest in a clinical trial that promised to deliver them babies forever protected from HIV infections.

Published
15 January 2019
From
STAT
One in 4 women at sexual health clinics reports coercion over their reproductive lives

As many as one in four women attending sexual and reproductive healthcare services say they are not allowed to take control of their own reproductive lives, reveals a review of the available evidence, published today in BMJ Sexual & Reproductive Health. As well as not being able to actively choose whether to use contraceptives, or start or continue with a pregnancy, this 'reproductive control' also takes the form of 'contraceptive sabotage', which includes covert removal of a condom during sex, so invalidating consent, the research shows.

Published
08 January 2019
From
EurekAlert
Malaysian AIDS council slams proposed mandatory HIV tests for non-Muslims

The Malaysian AIDS Council (MAC) has panned a proposal by the women, family and community development ministry to make HIV tests compulsory for non-Muslims intending to tie the knot. In a statement, MAC said conducting compulsory HIV screenings is not an “effective, long-term solution” to combat rising HIV cases, adding that HIV testing should only be done on a voluntary basis.

Published
20 December 2018
From
Free Malaysia Today
New York State May Soon Finally Eliminate Explicit Consent From HIV Testing in Care Settings

Most of the HIV advocacy community in New York City and the state at large now agree that the current law still obstructs testing for health providers -- largely because they find it awkward asking patients if they can test for HIV.

Published
30 November 2018
From
The Body
Q&A: Privacy ‘not keeping pace’ with digital health

The pace of technological advancement in digital health – where smartphones and the internet are being used to personalise health services – is moving faster than policies to ensure people’s data is being protected, according to Patricia Mechael, co-founder of the non-profit organisation HealthEnabled. For example, officials in Tanzania used health records to identify gay men.

Published
29 November 2018
From
Sci Dev Net
Jackie Morton – Disclosure? No exposure!

Sharing your HIV status ought to be a personal choice in every case and our decision not to disclose our status to our two sons survived for nine years until my admission to hospital on 5 November 2018 following a heart attack.

Published
22 November 2018
From
EATG

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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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