New booklet: A long life with HIV

Amelia Jones
Published: 18 September 2018

We have produced a new booklet that provides information on living well with HIV as you get older. A long life with HIV is available to read online, and in print through our patient information scheme.

The booklet is part of a range of resources available on aidsmap on health problems, co-morbidities and challenges that people living with HIV may face as they get older. You can find all these resources on our Living with HIV as you get older page:

A long life with HIV

More and more people living with HIV are now in their fifties, sixties or beyond. With the right treatment and care, most people with HIV can expect to have a near-normal life span.

Many people have concerns about getting older with HIV. A long life with HIV focuses on the practical things that people can do for themselves to look after their own health.

The booklet also provides information on health issues which may arise when living with HIV long term. This information can often be overwhelming but it’s been broken down into small sections. We’ve also included lots of illustrations throughout the booklet to help make it more accessible as well as visually appealing.

The booklet is not intended to replace discussions with medical teams – in fact, it should help you to engage with your doctor or healthcare providers about your health care.

A long life with HIV includes sections on:

  • HIV and your health: life expectancy for people with HIV, HIV and the ageing process, tailoring your treatment and multiple medications and drug interactions.
  • Other health issues: monitoring your health, and health conditions including raised lipids, high blood pressure, diabetes, bone problems and menopause.
  • Things you can do to look after your health: taking HIV treatment, stopping smoking and getting more physical activity.
  • Preparing for the future: work and employment, putting your affairs in order and learning how to manage multiple healthcare providers.

Each chapter also includes a ‘Find out more’ section, signposting to further information by NAM or other organisations.

One of our reviewers, Dr Tristan Barber from the Royal Free Hospital in London has commented:

“This brilliant booklet from NAM not only looks at the possible physical impacts of HIV and HIV therapy on people living with HIV infection as they age but also considers some of the psychological and social impacts too. It explains things clearly and is a fantastic resource for clinicians and patients caring for people living with HIV as they get older.”

Living with HIV as you get older

A long life with HIV is part of our Living with HIV as you get older range of resources which also includes:

  • Factsheets: 24 titles including HIV and the ageing process, Life expectancy for people living with HIV, Multiple medications and drug interactions and Dealing with multiple healthcare providers.
  • Side-effects checker: a tool to help you talk to your healthcare team about any side-effects or symptoms that you are experiencing.
  • Side-effects: a booklet that provides information about possible side-effects of HIV treatment.  
  • Translations: a selection of factsheets translated into Greek, Spanish and Portuguese.

NAM’s Patient Information Subscription Scheme

UK-based HIV and GUM clinics can order copies of A long life with HIV and Side-effects as well as all our other booklets and leaflets in our series The basics, through our online portal as part of our patient information subscription scheme.

To find out if your clinic is registered or for information on joining the scheme, please contact Susan at or call 020 7837 6988.

Thank you

A huge thank you to the following people for their assistance in reviewing this booklet:

Professor Jane Anderson, Homerton University Hospital NHS Foundation Trust; Dr Tristan Barber, Royal Free London NHS Foundation Trust; Clive Blowes, Terrence Higgins Trust; Garry Brough, Positively UK; Darren Brown, Chelsea & Westminster Hospital NHS Foundation Trust; Dr Stuart Gibson, Barts Health NHS Trust; Dr Tom Levett, Brighton and Sussex University Hospitals NHS Trust; Jo Josh, UK-CAB; Dr Fiona Lampe, University College London; Dr Frank Post, King's College Hospital NHS Foundation Trust; Dr Damien Ridge, University of Westminster; Dr Dana Rosenfeld, Keele University; Chris Sandford, Bloomsbury Patient Network; Dr Andrew Ustianowski, Pennine Acute Hospitals NHS Trust; Dr Jaime Vera, Brighton and Sussex University Hospitals NHS Trust; Dr Shema Tariq, University College London; Shaun Watson, Chelsea & Westminster Hospital NHS Foundation Trust; Professor Alan Winston, Imperial College Healthcare NHS Trust; Dr Mike Youle, Royal Free London NHS Foundation Trust.

NAM is grateful to Gilead Sciences Europe Ltd, Janssen-Cilag Ltd, Merck Sharp & Dohme Corp and ViiV Healthcare for funding the development of A long life with HIV and other resources in the Living with HIV as you get older project. Our funders have had no editorial control over the content.

Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap

This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.