Social hostility, prejudice
and discrimination towards people with HIV exists in every country in the world
on a broad social and political scale. This can result in the unfair and
unjust treatment of an individual based on his or her real or perceived HIV
status, and affect how people at risk of HIV consider their own risks and
willingness to test for the virus.
Although there have been
significant shifts in public opinion over the last few decades in high-income
countries2,3 – and, alongside
the increasing availability of treatment and care, more recently in low- and
middle-income settings4 – people living
with HIV continue to experience stigma in many aspects of their life.
HIV-related stigma (literally a 'mark of shame') devalues people
living with HIV. HIV-related stigma is felt by people with HIV when they
internalise the negative attitudes commonly associated with the virus. Read
about the impact of HIV-related stigma on the ability to talk honestly about
HIV in the chapter: Responsibility
The net impact of such
attitudes, as described by UNAIDS, is that people living with HIV "are
often believed to deserve their HIV-positive status as a result of having done
something 'wrong'. By attributing blame to particular individuals and groups
that are 'different', others can absolve themselves from acknowledging their
own risk, confronting the problem and caring for those affected."5
The drivers of social
hostility, prejudice and discrimination towards people with HIV are complex,
can be informed by personal and/or religious values and are often dependent on
setting. The stigma attached to HIV may be the result of the following factors:
- HIV is mistakenly
thought to always lead to AIDS and/or serious illness and death.
- HIV infectiousness
is often over-estimated.
- HIV
disproportionately affects groups that are already stigmatised, including men
who have sex with men, people who inject drugs, sex workers, prisoners, and
economically marginalised and/or migrant populations.
A study comparing stigmatising
attitudes towards people with HIV in Tanzania,
Thailand, South Africa and Zimbabwe found that contributing
factors include fear of transmission, fear of suffering and death, and the
burden of caring for family members living with HIV. Having a supportive
family, access to antiretrovirals and other resources, and self-protective
behaviours of people living with HIV (i.e. not disclosing their HIV status)
protected against HIV stigma and discrimination.6
A similar study found that
there was a correlation between stigmatising attitudes towards people with HIV,
HIV prevalence and the availability of treatment. Stigmatising attitudes
towards people with HIV were more prevalent where there were fewer people
living with HIV and where treatment access was more difficult.4
However, even in wealthy
countries where there is nearly universal access to HIV treatment, stigmatising
attitudes towards people with HIV continues to be a major issue. A 2006 Canadian
opinion poll on public attitudes towards HIV found that half of the respondents
said they would feel uncomfortable using a restaurant drinking glass once used
by a person living with HIV, and 27% would even feel uncomfortable wearing a
sweater once worn by a person living with HIV. This was despite the fact that
most respondents believed that they were knowledgeable regarding mode of HIV
transmission.7
Similarly, a 2009 US opinion poll
on public attitudes towards HIV found that 23% of respondents would be
uncomfortable working with someone they knew to be living with HIV, and half of
all respondents said they would be uncomfortable having their food prepared by
someone who is living with HIV.3 These
attitudes were associated with enduring misconceptions about how HIV is
transmitted and acquired.
And results from a recent survey by the National Centre in
HIV Social Research, based in Australia,
found that HIV-negative gay men who relied on HIV-status disclosure to inform
their decisions about sexual risk-taking were more likely to stigmatise HIV-positive
gay men.8