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Confidentiality, consent and medical ethics news

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The search for a cure
How can researchers reduce risks to sexual partners in studies involving treatment interruptions?

As studies working towards a functional cure or HIV eradication are creating risks not only for the HIV-positive people who take part, but also their sexual partners,

Published
20 July 2019
By
Roger Pebody
Confidentiality, consent and medical ethics
Scottish HIV patient suing NHS after being ‘outed’ as email blunder identifies dozens with the illness

A DISTRAUGHT HIV patient is to sue NHS Highland after he was "outed" in an email blunder. The Inverness-shire man who is in his 40s was left "shell-shocked and physically sick" after his details were shared.

Published
01 July 2019
From
Scottish Sun
Adherence
Researchers Discuss Ethics and Privacy Concerns About the Growing Field of HIV Adherence Monitoring

We have several ways to measure adherence to treatment or pre-exposure prophylaxis (PrEP). But as technology changes, and the fields of HIV medicine and public health focus increasingly on monitoring viral suppression or drug concentrations in the body for PrEP, the questions about the ethics of certain technologies, their uses, and what happens to that data are still being debated.

Published
25 June 2019
From
The Body Pro
Confidentiality, consent and medical ethics
HIV patients hit by NHS Highland email privacy breach

The email addresses of almost 40 people who have HIV have been made public by mistake. It is understood the 37 patients in the Highlands were able to see their own and the others people's addresses in an email from NHS Highland.

Published
18 June 2019
From
BBC News
Confidentiality, consent and medical ethics
Ex-nurse accused of raping woman loses appeal over HIV test

A former nurse charged with raping and impregnating an incapacitated patient at a long-term care center in Phoenix has lost his appeal of a court order requiring a test to determine if he has HIV or other sexually transmitted diseases.

Published
17 June 2019
From
Associated Press
Confidentiality, consent and medical ethics
Vancouver police search for subject of unprecedented HIV-medication order

Last October, David Hynd pleaded guilty to violating B.C.'s Public Health Act, marking the first time B.C. medical authorities used the courts to force someone into treatment for the virus that causes AIDS. But he now faces six counts of breaching the terms of that order — and police are asking for the public's help in locating the 35-year-old, who has allegedly eluded them for more than a month.

Published
07 June 2019
From
CBC
Confidentiality, consent and medical ethics
US lecturer found guilty of trying to extort Singapore government in HIV registry leak trial

A Kentucky court on Tuesday convicted the American at the centre of Singapore’s HIV registry leak of trying to extort the Singapore government by threatening to release stolen registry data more widely. The jury returned guilty verdicts on three counts against Mikhy Farrera Brochez, 34, for transferring the registry’s data to Kentucky and emailing online links to try to force Singapore’s government into freeing his jailed husband and closing the registry.

Published
06 June 2019
From
Channel News Asia
Bad science and bogus treatments
2 Chinese Babies With Edited Genes May Face Higher Risk Of Premature Death

There are new concerns about the world's first genetically modified babies. It appears that the genetic variation a Chinese scientist was trying to re-create when he edited twin girls' DNA may be more harmful than helpful to health overall, according to a study published Monday.

Published
04 June 2019
From
NPR
Clinical trials
UCSD has not told women with HIV of data breach, despite researchers' pleas

University of California San Diego officials stonewalled attempts to notify women in an HIV research study that their confidential data was breached more than seven months ago, an inewsource investigation has found. UCSD researchers conducting the EmPower Women study told university officials in October that participants’ names, audio-taped conversations and other sensitive materials were made accessible to everyone working at Christie’s Place, a San Diego nonprofit supporting women with HIV and AIDS.

Published
15 May 2019
From
inewsource
Clinical trials
Analytical treatment interruptions: minimising the risks and maximising their scientific value

Recommendations for the safe and appropriate use of ‘analytical treatment interruptions’ have been developed by a group of HIV experts, including clinicians, patient advocates, bioethicists, social scientists and

Published
15 May 2019
By
Alain Volny-Anne
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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.