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Confidentiality, consent and medical ethics news

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EGYPT: HIV-positive people battle health service discrimination

The last time Mustafa Abdel Rahman, an Egyptian living with HIV, visited a hospital in Cairo, he was treated so shoddily by the medical personnel that eight years on he refuses to go back.

Published
31 August 2011
From
PlusNews
U.S. scientists knew 1940s Guatemalan STD studies were unethical, panel finds

U.S. government researchers who purposely infected unwitting subjects with sexually transmitted diseases in Guatemala in the 1940s had obtained consent a few years earlier before conducting similar experiments in Indiana, investigators reported Monday.

Published
30 August 2011
From
Washington Post
South African clinic forces HIV tests

Staff at a government clinic are forcing patients to take HIV tests and those who refuse are denied treatment for their ailment.

Published
02 August 2011
From
Times LIVE
Canada: Tainted-blood victims not told about compensation availability

At least 200 potential victims of Canada's tainted-blood scandal have never officially been informed they could be entitled to thousands of dollars in compensation.

Published
17 July 2011
From
Vancouver Sun
UK: Tougher penalties planned for NHS data losses

The information commissioner has called for tougher penalties on NHS trusts and hospitals who lose patients' personal medical records.

Published
01 July 2011
From
The Guardian
US Supreme Court to review pilot's privacy suit

The U.S. Supreme Court agreed Monday to hear the Obama administration's request to dismiss a lawsuit by a San Francisco pilot against federal agencies that disclosed his HIV-positive status during a fraud investigation.

Published
21 June 2011
From
San Francisco Chronicle
UK: 8 million patient records on missing NHS laptop

An NHS laptop containing millions of patients' sensitive information has been lost or stolen, it has been reported.

Published
16 June 2011
From
Public Service
Treatment Refusal = Criminal?

HIV prevention and treatment policy-making is veering towards the coercive, abandoning respect for individual autonomy and opening the door to tyranny, paternalistic or otherwise.

Published
13 June 2011
From
Poz
Philosopher: "Refusing to find out your HIV status is not a human right"

“A policy of ‘mandatory knowledge‘, in which the individual is required to find out their HIV status and demonstrate he or she has this knowledge, would not be a human rights violation,” Professor Lucy Allais said.

Published
10 June 2011
From
Times Live
Treatment as Prevention: Protecting patient autonomy

The recent demonstration that antiretroviral treatment can prevent transmission of HIV among serodiscordant heterosexual couples is great news.  However, when the person offered treatment has not yet been shown to personally benefit from it, an ethical issue needs to be addressed.  This is because it has yet to be reliably shown that for people with greater than 350 CD4 lymphocytes, starting treatment immediately rather than deferring it confers a net benefit; indeed, it may even prove to be harmful.  

Published
07 June 2011
From
Poz

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Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.