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Your rights with the media

HIV sometimes gets good coverage in the media. At other times the media uses clichés, is inaccurate and expresses prejudice. It can be annoying to find HIV misrepresented as a ‘death sentence’ or to see people living with HIV being represented as irresponsible.

One way of coping with stigma in the media is to ignore it. If you know that an article in a newspaper or a programme on the TV or radio is going to upset you or make you angry, then you don’t need to read, watch or listen to it.

Try to develop a strategy for dealing with inaccurate or stigmatising media items. For example, tell yourself how poor it is that a journalist is so bad at their job that they can’t get basic facts right. Or try reminding yourself that the stigma or prejudice that an item reflects is simply wrong.

“I’ve seen documents using the word ‘AIDS’ when they mean HIV. They just automatically say the word AIDS. To me, it kind of means final, it’s too strong a word.”

“One of the biggest stigmatising things, I think, is the way the media presents those criminalisation cases. That the whole issue is turned into innocent victim horror, you know a horrid evil character who is going out and doing it.”

You might want to write a letter of comment or complaint, pointing out the item’s faults and inaccuracies.

News-based websites usually have a response page where you can point out errors and inaccuracies. Any reputable TV or radio station will have a department to respond to viewers’ and listeners’ comments and complaints, and newspapers and magazines have letters pages.

The National AIDS Trust (NAT) has a specialist press department which actively challenges misrepresentation and bad coverage of HIV. So if you don’t feel confident complaining to the media yourself, try contacting NAT’s press office on 020 7814 6767. NAT has made successful complaints to the Independent Press Standards Organisation (0300 123 2220) about the way HIV is reported.

NAT also has a team of people with HIV called the ‘Press Gang’. They are interested in engaging with the media to try and make sure that HIV is accurately reported and that inaccuracies are challenged. For more information, contact NAT on the number listed above.

Similarly, the African Health Policy Network (AHPN) has a group called Ffena. They also aim to influence the way the media talks about HIV and can be contacted on 020 8555 5778.

Should you become the focus of media attention, think very carefully before speaking to a journalist and consider asking an HIV agency with experience of media work for support.

 

HIV, stigma & discrimination

Published January 2018

Last reviewed January 2018

Next review January 2021

Contact NAM to find out more about the scientific research and information used to produce this booklet.

This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.
Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap
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This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.