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Getting support and championing your rights

“I run groups for newly diagnosed people, helping others with their diagnosis also helps me.”

There are a lot of organisations to turn to if you feel stigmatised or have experienced discrimination. There are also organisations which can help you make your voice heard or who lead campaigns against the unfair treatment of people living with HIV.

Here are the details of just some of the organisations which support people with HIV.

To get details of organisations in your local area, telephone THT Direct (0808 802 1221) or ask at your HIV clinic.

Citizens Advice

There are over 3500 local Citizens Advice offices, offering free, independent, confidential and impartial advice. There is also a lot of useful information on the Citizens Advice website. Topics covered include benefits, work, debt and money, consumer, family, housing, law and immigration.

Equality Advisory and Support Service (EASS)

EASS advises and assists individuals on issues relating to equality and human rights, across England, Scotland and Wales.

HIV Scotland

18 York Place, Edinburgh EH1 3EP

HIV Scotland is an HIV voluntary sector policy and support organisation, providing co-ordination and responding to issues such as stigma and health inequalities in Scotland.


Acorn House, 314-320 Gray’s Inn Road, London WC1X 8DP

NAM produces a range of HIV treatment and other related information, both in print and online. Our website includes lots of information on HIV and HIV services, so you can find what’s available near you.

National AIDS Trust (NAT)

Aztec House, 397-405 Archway Road, London N6 4EY

A campaigning and policy organisation that has taken a lead in fighting HIV-related stigma. Its campaigning work and information resources have dealt with employment, benefits, housing, confidentiality, the immigration system, criminal prosecutions and other issues. NAT takes an active role in challenging inaccurate and stigmatising media coverage of HIV.


30 Blacks Road, London W6 9DT

NAZ is a sexual health charity working to improve the sexual health outcomes of Black Asian Minority Ethnic (BAME) communities. NAZ provides sexual health and HIV prevention and support services to Asian, African, Muslim, Portuguese-speaking and Spanish-speaking communities. NAZ aims to educate and empower communities and to mobilise the support networks that exist for people living with HIV.

The People Living with HIV Stigma Survey UK

This is a participatory research project, led by people living with HIV, aiming to better understand how stigma and discrimination are experienced by people living with HIV. Some of the quotes used in this booklet came from Stigma Survey participants.

Positively UK

345 City Road, London EC1V 1LR

Positively UK provides peer-led support, advocacy and information to people living with HIV on any aspect of their diagnosis, care and managing life with HIV. They train and support people living with HIV to provide peer support.

Terrence Higgins Trust

Terrence Higgins Trust (THT) is the largest HIV charity in the UK. THT provides a wide range of support and advocacy services in towns and cities throughout England, Wales and Scotland.

THT Direct is a phone line providing a gateway to HIV information, services and support. Details of services provided by THT and by other HIV organisations can be obtained from THT Direct.

THT has also taken a leading role in campaigning for equality for people with HIV and for better sexual health services for everybody. Its website provides details of current campaigns and tips on how to influence health services.

HIV, stigma & discrimination

Published January 2018

Last reviewed January 2018

Next review January 2021

Contact NAM to find out more about the scientific research and information used to produce this booklet.

This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.
Community Consensus Statement on Access to HIV Treatment and its Use for Prevention

Together, we can make it happen

We can end HIV soon if people have equal access to HIV drugs as treatment and as PrEP, and have free choice over whether to take them.

Launched today, the Community Consensus Statement is a basic set of principles aimed at making sure that happens.

The Community Consensus Statement is a joint initiative of AVAC, EATG, MSMGF, GNP+, HIV i-Base, the International HIV/AIDS Alliance, ITPC and NAM/aidsmap

This content was checked for accuracy at the time it was written. It may have been superseded by more recent developments. NAM recommends checking whether this is the most current information when making decisions that may affect your health.

NAM’s information is intended to support, rather than replace, consultation with a healthcare professional. Talk to your doctor or another member of your healthcare team for advice tailored to your situation.